
Why I Started 100% That Mom
There was a time when my daughter’s world became smaller.
Not because she wanted it to, but because Crohn’s Disease slowly began taking pieces of childhood away from her.
The things that should have been simple—going to school, spending time with friends, making plans without worrying about the nearest bathroom—became obstacles that most people never saw. While other kids were just being kids, she was learning words like inflammation, infusions, medications, and procedures.
And I became that mom.
The mom who sent the extra emails.
The mom who questioned decisions.
The mom who showed up to meetings with notes, medical records, and determination.
The mom who asked for accommodations, pushed back when something didn’t feel right, and refused to accept “good enough” when it came to my child.
I’m sure there were moments when I seemed difficult.
Overprotective.
Too much.
But here’s what people couldn’t see:
I wasn’t fighting because I enjoyed conflict.
I was fighting because my daughter deserved every opportunity to have the childhood that illness was trying to steal.
No parent dreams of becoming an expert in navigating chronic illness. No one hopes to spend their nights researching treatments or wondering if tomorrow will be a better day.
But love has a way of making ordinary people extraordinarily brave.
Years later, when I look at my daughter, I don’t see only the hard days.
I see resilience.
I see courage.
I see a young woman who has endured more than many people ever will, yet continues to move forward with strength.
And I see a mother who no longer apologizes for being “that mom.”
Because if standing up for your child makes you that mom…
Then wear the title proudly.
This community is for every parent who has ever fought battles no one else could see.
For every caregiver who has sat in waiting rooms, challenged the system, advocated when it was exhausting, and loved so fiercely that they were willing to be misunderstood.
You were never “too much.”
You were exactly what your child needed.
Welcome to 100% That Mom.